Our missions
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Understanding
– Promoting national and international scientific meetings on emerging topics
– Facilitating exchanges and cooperation by acting as a catalyst for energy and knowledge
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Inform
– Enable families to access useful information and advice– Disseminate knowledge and expertise
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Encourage
– Lead and support all actions that improve perceptions of the disease
– Promote initiatives focused on patients and their caregivers
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Help
– Support fundamental and clinical research
– Promote any innovative support and care projects
